What is the MGA?

The Myasthenia Gravis Association (MGA) is dedicated to improving the quality of life for those who are affected by this autoimmune, neuromuscular disease through awareness, education and member services.

To Donate to the Myasthenia Gravis Association please click here! 

 

What is Myasthenia Gravis?

Myasthenia Gravis (MG) means grave or severe muscle weakness.  It is an autoimmune, neuromuscular disease characterized by fluctuating weakness of the voluntary muscle groups.  MG occurs in all races, both genders, and at any age.  It is a potentially fatal     disease without a cure, however, with early diagnosis and proper medical treatment the disease can be controlled.  The prevalence of MG in the United States is estimated to be about 1 out of 5,000.  Yet, MG is probably under diagnosed and the prevalence may be higher.  The symptoms include:double vision, drooping eyelids, slurred speech, difficulty chewing and swallowing, difficulty breathing and weakness in arms and/or legs.

For More Information, contact the Myasthenia Gravis Association at (816) 256-4100 or mgakc@sbcglobal.net or visit www.mgakc.org.

 

MGA 5K Committee Members

Keith Asaeli (facebook.com/kasaeli)

keithasaeli

How long have you been on the committee?

This is my 1st year!

What you do in real life?

I am a Sr. Client Relations Liaison with Broadridge Customer Communications. I’m basically an account manager for several clients.

Fun Fact about you:

One time I met Eric Hosmer. (See picture!)

What is your goal is for this years MGA Triple Crown Run:

My goal is that we are able to raise more funds and awareness for MG!

 


Shelley Simpson

shelleysimpson

How did you become involved with the MGA?

I met Allison Foss around late 2012. It was months before I even knew she had MG and that was the first time I had heard the words myasthenia gravis. As a runner, I am always looking for local races in my area. When I found out that Allison not only was involved with a 5k but she actually started one for MG, I just knew I had to help in any way I could.

How long have you been on the committee?

I started as a “race day” volunteer at the 3rd annual event in 2013 and joined the committee that day to help organize the 2014 run.

What you do in real life?

I’m an accountant for Cline Wood, a Marsh & McLennan Agency. However my resume is ready & I’m just waiting on the position of Wonder Woman to open up again. Fingers crossed my “Underoos” still fit.

Fun Fact about you:

Everything about me is fun… not just the facts  :)(Shelley’s not kidding- you should meet her!

What is your goal is for this year’s run:

I would love to have more participants with MG register & come out for the event. Registration is free and even if you can’t actually do the run or walk, we love having you. It’s always so motivating for the committee, volunteers & runners to see how we are helping the MG community. Our goal is to raise awareness & improve the lives of those living with MG and if more people see how great life can be, we’ve done our job.

 


Megan Britz

meganbritz

How did you become involved with the MGA?

A former co-worker of mine (hi Liz Weber) was involved in the MGA Triple Crown Run and when she moved away the committee asked if I would be interested in taking on a role.

How long have you been on the committee?

This is my second year on the committee.

What you do in real life?

I am a Senior Sales Consultant for KONE Elevators.

Fun Fact about you:

I have completed one full marathon and have no desire to ever run that far again.

What is your goal is for this years run:

My goal for this years run is to get more family, friends and running groups involved this year. We had a great turnout last year and want to continue to grow this race.

 


Erin Ressegieu

erinressegieu

How long have you been on the committee?

This is my first year!

What you do in real life?

I am a administrative assistant at Treadwell LLC.

Fun Fact about you:

I consider myself a connoisseur of all things bbq (that includes cooking & eating it)

What is your goal is for this years run:

My goal for this run is to create a fun and vibrant atmosphere for people to be inspired to help such a great organization such as MGA and also get their run on.

 


Megan Friedman

meganfriedman

How did you become involved with the MGA?

I became involved on this committee because of Allison! There are also so many of my fabulous friends on the committee and wanted to jump in and help as well.

How long have you been on the committee?

This is my first year! I am so excited to be a part of this committee and support MGA.

What you do in real life?

I work in the Learning Services department part-time for Baker University. I am also an instructor for Baker and teach Intro to Business.

Fun Fact about you:

I recently won a trip to the American Music Awards through Kohl’s! It was a bucket list item for sure! You may have seen me during the AMAs as cameras followed us throughout our experience from our own personal style session with a celebrity stylist, to attending the rehearsals, walking the red carpet, and sitting up close and personal at the AMAs.

What is your goal is for this years run:

I am working on the Kid’s area for the run, and I want to make it as much fun as possible for the kids. My 10 year old daughter is excited to help as well.

 


Erica Althaus

ericaalthaus

How did you become involved with the MGA?

My family participated in the run a couple years to support our friend Allison and MGA.  I was fortunate to be asked to help coordinate the children activities for the race.

How long have you been on the committee?  

This will be my second year.

What  you do in real life?

I am a stay at home mom to my 3 kiddos who are 7,5, and 2.

Fun Fact about you:

I wish I had a fun fact about me! :)

What is your goal is for this years run:  

To help continue to raise awareness, increase donations and participates.  Most importantly to have fun while supporting a great cause!

 


Jordan Faiferlick

jordanfaiferlick

How did you become involved with the MGA?

Through the inspiration and involvement of two wonderful women: Danielle Walk and Allison Foss.

How long have you been on the committee?

This is my first year!

What do you do in real life?

In real life I am a cat mom, Harry Potter enthusiast, and food critic to Kitchen a la Josh (my boyfriend). In my free time I work at Cerner as a Consulting Analyst.

Fun fact about you:

My student loans would be fully paid for had my mom not gotten rid of my Beanie Babies and Disney VHS tapes.

What is your goal for this year’s run:

Not only to raise more money than last year, but also have the most volunteers in MGA’s history turn out for the event!

 


Aubrey Grover

aubreygrover

How did you become involved with the MGA?

The MGA works closely with and is a wonderful asset for our patients at the University of Kansas Neurology. I get to see Anne every Tuesday during clinic and became very interested in getting involved with the MGA by seeing first hand the wonderful  support they offer Myasthenia Gravis patients and the multitude of ways they promote awareness throughout the community.

How long have you been on the committee?

This is my first year on the he committee! Woohoo!

What  you do in real life?

I work as a nurse for the neuromuscular department for the Universoty of Kansas Neurology!

Fun Fact about you:

I recently got engaged over Thanksgiving weekend!

What is your goal is for this years run:

My goal for this years run is to help spread Myasthenia Gravis awareness throughout the community! Creating awareness for Myasthenia Gravis and the effect it has on people is critically important. I also LOVE seeing my MG patients outside of clinic, so my other goal is to be able to see many of those faces at the walk this May!

 


Megan Anderson

 

How did you become involved with the MGA?

I was introduced to the MGA through Cline Wood, a Marsh & McLennan Agency LLC Company when I ran the race two years ago. My friends and co- workers (Hi Shelley & Kristine) introduced me to Allison when we took our dogs to the Royals game last year. From then on I guess the rest is history!

How long have you been on the committee? 

This is my first year :)

What you do in real life? 

I am an Associate Account Manager & Underwriting Assistant in the Agribusiness Department at Cline Wood, a Marsh & McLennan Agency LLC Company.

Fun Fact about you: 

I love baking and crafting in my free time.

What is your goal is for this years run: 

I would love to have a record number of participants and funds raised at this year’s race. I would also like to increase awareness and understanding of MG.

 


Kyle Flander

kyleflander

How did you become involved with the MGA?

I had already been helping with race day every year and knew the majority of the committee so I figured why not make it official!

How long have you been on the committee? 

This is my second year on the committee and have been helping out on race day since the 5K started.

What you do in real life?

I am a process improvement engineer for a garage door manufacturing company in Lawrence call Amarr/Entrematic.

Fun Fact about you:

I am on a competition BBQ team and can make some mean ribs that has finished in the top 20 at the American Royal multiple times

What is your goal is for this years run:  

To help bring in more sponsors to the event and make sure there is a great variety raffle prizes and gifts for the runners.

 


Allison Foss

allisonfoss

How did you become involved with the MGA?

I was diagnosed with Myasthenia Gravis when I was 5 years old. About 8 years ago I decided I wanted to start giving back more in the community in which I live and started working to put together a run to raise awareness.

What do you do in real life?

I work for Johnson County Government in Developmental Supports where I am a Targeted Case Manager for individuals with special needs.

Fun Fact about you:

In 2003 my family was the Iowa State University Family of the Year. Proud Cyclone Alumni! Go Cyclones! And PS. That might be why there are some Iowa State tie ins to the run. The local Kansas City Alumni Club has been a vital supporter of the run since day one. Thank you!

What is your goal is for this years run:

So last year pretty much blew it out of the water. We had 475 runners, walkers and tot trotters and raised $40,000. I still get goose bumps when I think about that. We started as a grass roots effort and now have a 5K held at a major shopping district in Johnson County, Town Center. I guess my goal for this year has to do with the number 5. Can we get 550 runners, walkers and tot trotters? Can we raise $50K? That would be awesome if we could!

 


Kristine Henson

kristinehenson

How did you become involved with the MGA?

A couple of my Iowa State friends were on the committee and invited me to join! I’ve always ran races for charity so it was fun to be involved in the planning of a race. It’s been amazing to see how the race has helped spread awareness of Myasthenia Gravis and to meet those that we are helping.

How long have you been on the committee?

I joined the committee in 2011 and became the Race Day Director in 2012. It’s been so great to see how the race has grown and to work with such wonderful people.

What you do in real life?

I’m an accountant for Cline Wood, a Marsh & McLennan Agency LLC company. It’s a blessing working for a company that is so charitable and has so many employee MGA race participants and volunteers every year!

Fun Fact about you:

I love to challenge myself, whether it be running a marathon or riding my bike across the state of Iowa. Always believe in yourself!

What is your goal is for this year’s run:

To see more runners, walkers & tot trotters on race day! Last year’s turnout was incredible and I’d love to see even more participants this year!

 


Bethany Rose

bethanyrose

How did you become involved with the MGA?

My good friend, Kristine Henson, recruited me to help with Marketing. I had been looking for some volunteer opportunities so I was so happy to come aboard and help!

How long have you been on the committee?

This will be my third 5K.

What do you do in real life?

I am a SAHM to two crazy boys (pictured) and I work part time doing social media consulting for a small company called Beer Cap Maps (awesome gift ideas for your beer loving friends!!!). It’s a totally fun job though, so it can hardly be considered work.

Fun Fact about you:

I grew up on a Dairy Farm and would help milk cows in the summers. Those that know me are typically shocked when they hear this.

What is your goal is for this years run:

Right now, the #1 goal is always to increase runners. We want to grow this run and continue to try to raise awareness for the MGA!

 


Danielle Walk

daniellewalk

How did you become involved with the MGA?

I shared a office suite with the MGA for about two years and then a position came open and I knew it was a great organization I would love to be a part of.  As of Dec. 10th I will have been the MGA’s Executive Director for 4 years.

How long have you been on the committee?

4 years

What you do in real life?

I work for the MGA :)

Fun Fact about you:

I grew up on a cattle farm and used to make my mom sit through fake “rodeos” I put on with our calves.  Sorry mom!

What is your goal is for this years run:

My goal for 2017 is to hit over 500 participants so we can generate more awareness, create hope for our MGers and raise the vital funds we need to continue to provide information, support and programs to our members.  My ultimate goal is for everyone in our community to be able to say “I have heard of MG”!

 


Susan Bauer

susanbauer

How did you become involved with the MGA?

I first heard about it in 2014 when I worked with Shelley and Kristine at Cline Wood. I was pulled in to do some quick graphics and work on the logo and knew I could help more so offered my assistance.

How long have you been on the committee?

Since 2014

What you do in real life?

I work for the Mid-West CAD doing their Marketing, selling Autodesk software.

Fun Fact about you:

I got into a car accident with Nicolas Cage. NO KIDDING! I was working in San Francisco at the time and he backed into my car in a public parking garage!

What is your goal is for this years run:

My goal for 2017 is to generate more awareness through a strong, recognizable brand so that we can continue to grow!

 


Jessie Melton